Dementia and self-management

OCN ResourcesSelf Management
Last updated on May 6, 2020

The Dementia and Self-Management booklet was written and researched by the Scottish Dementia Alumni. Many of the group – which comprises people who have each been living with dementia for over ten years – felt they had been left largely to self-manage their lives and condition after diagnosis.

However, there is little guidance from official or medical sources of what ‘self-management’ is, so the Alumni determined to research what the term means to people living with different forms of dementia in various circumstances and how this idea affects their everyday lives.

The booklet and accompanying video were supported through funding from Life Changes Network and the DEEP Network.

Agnes Houston MBE and James McKillop MBE reflect on the Dementia and Self-Management project.